With the inception of digital technologies in a clinical setting, there has been a rapid proliferation of standards that regulate how this information is stored, used, and accessed. Standards represent an essential part of maintaining data integrity and patient confidentiality. However, they can be complex, multi-faceted and confusing in today’s interconnected health information exchanges.
The Nationwide Health Information Network (NHIN), created in 2004 by the Office of the National Coordinator for Health Information Technology, sought to provide the framework for ensuring that health information exchanges over the internet are secure. The NHIN officially became the eHealth Exchange in 2012, but its goals remained the same throughout the transition. Toward this end, the eHealth Exchange provides a comprehensive set of standards, services and policies. These standards encompass several different elements, including:
- Definition of data elements – This includes identifying what content can be collected and exchanged.
- Data interchange formats – These formats refer to the encoding of data elements, document architectures to structure the data elements during the exchange and information models that identify the relationships among the data contained in a message.
- Terminology – These are the terms and concepts that describe, classify, and code the data elements and the relationships between the terms and concepts.
- Knowledge Representation – This relates to the methods for electronically presenting medical literature, clinical practices and other essential data used for decision-making.
eHealth Exchange Standards – Essential in Today’s Clinical Information Environment
Given the gravity of patient data safety as well as the essential need for interoperability, any health information platform needs to pay strong attention to the standards required on this network. It currently reaches all 50 states in the US, 75% of the hospitals in the nation, over 70,000 medical groups, over 3,400 dialysis centers and over 8,300 pharmacies. In addition to this, four federal agencies use the exchange, including the Department of Defense, Veterans Affairs, the Centers for Medicare & Medicaid Services and the Social Security Administration. This represents the vast majority of medical information transactions on a national level, creating the need for any HIE to ensure compliance with the standards and interoperability in order to remain functional in the current clinical data environment.
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The shared architecture and standards that are found with the eHealth Exchange boast several key features. These include:
- Common Legal Agreements
- Shared governance
- Central Contact (no point-to-point agreements necessary)
- Neutral, representative, equitable governance
- Technology and vendor neutral (standards-focused)
- Security model that enables access controls
Applications:
The NHIW and subsequently the eHealth Exchange, have some very concrete applications that function to provide direct and indirect patient care with the hope that it will lead to improved health.
- Providing the capability for standards-based, secure data exchanges on a national level.
- Improving the coordination of care across a wide range of different clinical facilities, including hospitals, pharmacies and any other treatment centers.
- Ensuring access to vital, secure and confidential information at the point of care.
- Empowering patients with a greater ability to manage and control their personal health information.
- Reducing the risk of medical errors through detailed information with a lengthy history.
- Creating information-sharing efficiencies that can lower healthcare costs.
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Moving Forward
Though the eHealth Exchange represents the largest network that serves as a mechanism for health information exchanges, it will never be the only option. The governing agency, a non-profit and public-private collaborative, called the Sequoia Project, is committed to the goal of improving the quality and security of health information. In this capacity, it has also taken under its umbrella, the Carequality framework and aligned with the Commonwell Health Alliance. Unlike the eHealth Exchange’s function as a network, Carequality and Commonwell function as a network-to-network trust framework. This allows medical providers on any network to access data on other networks. The standards found with Carequality provide for these disparate systems to still access the critical data they need in a secure manner.
With the proliferation of different HIEs and EMR platforms, the eHealth Exchange and Carequality provide the standards that make interoperability easier and lead to better treatment of patient data. These standards should exist as an essential component in any new digital, medical platform.